Thank you Michael Edgington for doing the portraits!!!
I am here to share in the life of our family, especially my joy, Lilah. She was born with Achondroplasia, a form of dwarfism. I would like to share my support, ups, and downs, accomplishments and short comings about our family and taking care of Lilah. It's not that I would die for her, but that I live each day for her.
Wednesday, March 16, 2011
Mommy and Lilah
A mini-photo shoot with me and the kiddo. We had fun doing this and was a last minute decision, but I think the photos turned out well. We're going to need some photos of the Princess and I when we move :)
Playing Catch-up, Christmas 2010
Yep, trying to do a full catch up again, so the pictures will be on OVERLOAD! I've been so busy with trying to get finish my degree and getting a new job, then with the holidays, and cutting back on my internet time, the blog has been neglected! :( BUT the camera is always in full swing!!!
Here are some photos of Lilah's time in IL with her dad's family. They all LOVED having her there and she was so happy to see them again! Even though Mommy missed her dearly, I know she had a wonderful time and an overload on Christmas!!!
I just love those slippers on her and she loves to wear them!
Wednesday, January 19, 2011
Pa-pa's Birthday
We celebrated my dads 40 + 4 + 5th birthday! Yea, that's his 49th birthday! We love you so much dad! You have been there for us through everything and are one of our biggest supporters! I am so thankful to have you in our lives, I can't imagine where we would be without you today! You mean the world to us and thank you for being there for me..even when I don't want to listen! We LOVE YOU Pa-Pa!!!!
*Please excuse the 'holiday tree' outfit!* Lilah all ready to give Pa-Pa his gift!
Elijah being his silly self!
Now do you understand the 40 + 4 + 5th?! We couldn't find the '9' candle, so we were creative! :)
My dad's favorite cake, Pineapple Upside Down Cake!!!
First Christmas Program
Oh how I have been waiting on this day for sooo long! Lilah's first school Christmas program! Every day after school I would hear her and my nieces and nephews singing their songs for the program. She was sooo excited to be able to sing that night.
With her cousin Eli, who also sang with his class in the program.
Santa, lights, and Ice Skating
During Christmas time I HAD to take Lilah to see Santa somewhere. I wasn't sure how well she would do because the past few years have been a bit, well, unpredictable! This year she was SUPER excited to see Santa. She walked right up to him, sat next to him, and before HE could say anything she states:
"I want a Barbie princess and a Dora baby!"
We went to the "Lights on the Lake" show at Heartspring this year. This is the same place she had therapy over half the year last year. (Which they did a great job working with her. She spent all summer learning to button various buttons and cut properly with scissors for an LP. Which really showed when she started Pre-k 3/4 this year!)
Lilah with all the lights...which she absolutely LOVED! This display wrapped around a large tree, which led to the lake.
I had been wanting to take Lilah Ice Skating since I had so much fun when I went a few weeks earlier. Luckily for us a friend of mine was having a get together there for his birthday and I brought Lilah along. Let me tell you, Ice Skating is fun, but I do not recommend taking a little one if you do not have any skating experience!
We managed NOT to fall, not once!!! I was proud of the both of us and she was proud of herself! We made it around the rink two and a half times in an HOUR!
"Look ma, no hands!" She was very happy that she was able to stand up all by herself OFF the ice. *You can see my hand in fear of her falling!!!*
Making silly faces to prove to me further that she can stand on her own AND make silly faces!
Labels:
Christmas,
heartspring,
ice,
lights,
lights on the lake,
santa,
skating
Wednesday, December 8, 2010
Holiday Family Christmas Program
For the second year, Lilah and I attended a holiday concert put on by the Wichita Orchestra. This year was more packed than last year, but we always had fun! The music presented is beautiful and well planned, as well as the program. The holidays are among us and Christmas is creeping ever near!!!
Excited and waiting patiently!!!
Who needs music to dance?!
Tried to get a great photo but this is all I got!
It's about to start! Sssshhhhh
Oh, I also can't wait to show Lilah a few of the light shows we have locally, and let her see Santa Clause! Since it is getting dark out earlier I try to take a few detours on the way home and she loves to look at the lights!
LPA Christmas Party
This weekend we had our LPA Sunflower Chapter, District 8 Christmas/Holiday party. As usual we have a mixed turnout, but we always have fun! This year was more important than any before because we also discussed events for our LPA regional meeting to be held here, in Wichita, KS April 8th-9th. We are so EXCITED about this because there has not been a regional conference here in almost 7 years!
We have a lot of exciting things planned for this regional meet. I have been given the task to help coordinate the teen and parent groups that will be held. Something I am nervous about, but also excited! I am being helped by another brave mom for this task! (Thanks Petey!!!)
Also, I took on the task of being the online coordinator for the Sunflower Chapter! There will be an official website up and running next year, hopefully by the end of January-but that will be spearheaded by a parent-company who so graciously volunteered their time and talents to get this started and running for our chapter. My main focus will be on Facebook and the social networking of the group for now. Look for that page to be up and running by the end of the year!
We always love getting together with our LP friends and are so thankful to have so many local families here for guidance and support with and for Lilah. There is a lot we would not be able to do if it weren't for the support of families!
Looking forward to updating you all on our Chapter regional and the outcome!!!
We have a lot of exciting things planned for this regional meet. I have been given the task to help coordinate the teen and parent groups that will be held. Something I am nervous about, but also excited! I am being helped by another brave mom for this task! (Thanks Petey!!!)
Also, I took on the task of being the online coordinator for the Sunflower Chapter! There will be an official website up and running next year, hopefully by the end of January-but that will be spearheaded by a parent-company who so graciously volunteered their time and talents to get this started and running for our chapter. My main focus will be on Facebook and the social networking of the group for now. Look for that page to be up and running by the end of the year!
We always love getting together with our LP friends and are so thankful to have so many local families here for guidance and support with and for Lilah. There is a lot we would not be able to do if it weren't for the support of families!
Looking forward to updating you all on our Chapter regional and the outcome!!!
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