Yea, Lilah made it out of surgery yesterday around 200p.m. They took her from us around 830 yesterday morning and kept us updated every hour, and they were not able to get started until almost 1030 am on Thursday. the doctors had a hard time getting the nerves in her left leg to work in the beginning, but were still able to monitor it all through the surgery and nothing changed, which is a good thing. After they finished up, we got to see her, and she was still pretty drugged up.
Dr.Aronin had to make about a 5 inch incision from part of her back which goes up to her head. It was so long b/c the area which she was operating was very tight and Dr.Aronin did have to take out a middle piece of her first vertebrae. All the rest went very well and Lilah has been recovering very well.
She is still in some pain, but it is minimal and limited to her not wanting to move her head or body much on her own. She has figured out that if she lays as still as possible, then it hurts less. Also, she is not hooked to anymore monitors, no IV's, just a little cap on her head to keep the bandages on. And for those w/LP children, she is sweating more than usual! So when we walk w/her, it looks funny because she has on a cap, holding her blankie in one hand and only a diaper on!
But hopefully we will be able to take her home by Sunday if she continues to eat well and not be in to much pain. Please continue to keep her in your thoughts and prayers because she still has a recovery period and process to go through!
Thank you all so much!!!
We're so glad it all went well for you guys! I'm sorry Lilah is still hurting, but I really hope this helps her from here on out... It was so scary for us to see two of our friends go through this in the space of a few weeks, and it's really changed the way we're going to be approaching our geneticist appointment next Friday!
ReplyDeleteI hope you guys are going to be able to head home soon - our prayers are still with you!
What a relief! I knew she was going to be ok! I hope you guys can get some much deserved rest!
ReplyDeleteSheri, I'm so glad to hear that all went with it Lilah's surgery. You have been in my thoughts and I thank you for posting this blog to let us all know what is going on. Like Mike said, it's very scary knowing both Lilah and Anais have dealt with surgeries recently, but we're so relieved that all went well.
ReplyDeleteHope that you get to get home soon! Our thoughts will stay with you as Lilah recovers.
What great news! Kids bounce back so quickly that she'll be back to normal before you know it! BTW, I somehow missed your blog - Lilah is totally adorable!
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